nettiesaur Posted July 21, 2008 Share Posted July 21, 2008 Just want to weigh in with a:hug2: GG. I know that all of these decisions are gut wrenching, especially since your son is so young, but I know that you are going to do what is best for him out of the love that you have for him. Link to comment Share on other sites More sharing options...
Daylin Posted July 21, 2008 Share Posted July 21, 2008 GG, words are getting in my way of what I want to say. So, just know that you and your family are in my thoughts GG, you are the core of your family. I can tell from getting to know you here. I know you're the one that has to be strong for K and everyone. We're here for you when you need to let things out. Take care, M Link to comment Share on other sites More sharing options...
CeeJ Posted July 23, 2008 Share Posted July 23, 2008 GG... I really don't know what to say here. I know that you are all doing everything in your power to keep things together for Stephen as well as yourselves and I wish there were something that we could do for you. Please know that we are all here for you to listen when you need to vent or breakdown. I hope that something changes fast so that your doesn't break any further. I LOVE YOU SISTER!!! Link to comment Share on other sites More sharing options...
Mara Posted August 12, 2008 Share Posted August 12, 2008 I had to share this story with you. It's kind of funny, in its own way. . . I've gotten to be friendly with the night guy at the QuikTrip where I get my coffee (not the same guy who gives me free coffee for being a Rush fan - 2 different stores). We chat a little whenever he's there and they aren't busy. Anyway, I noticed that tonight he was looking a little weary. I remarked upon it, and he asked if I had time for "a little story." Sure, I've got some down time. He has 3 children, among them an autistic son. Last night, at around 4am, his son decides it's bath time. No one KNEW he was taking a bath until about 4:30 or so. He went in the bathroom, and there was his son, happy as a lark in the tub. He had also opened the cupboards and dumped the contents into the tub as well. . .about 12 rolls of toilet paper, all of the tampons and Kotex, hair products. All in the bathtub. He finds it funny now, but at the time it was understandably a little scary that the kid could get so busy with no one hearing him. He says he's so glad the routine of school has started back. Link to comment Share on other sites More sharing options...
Cygnus The God Of Balance Posted August 13, 2008 Share Posted August 13, 2008 QUOTE (Marathonist @ Aug 11 2008, 08:57 PM) I had to share this story with you. It's kind of funny, in its own way. . . I've gotten to be friendly with the night guy at the QuikTrip where I get my coffee (not the same guy who gives me free coffee for being a Rush fan - 2 different stores). We chat a little whenever he's there and they aren't busy. Anyway, I noticed that tonight he was looking a little weary. I remarked upon it, and he asked if I had time for "a little story." Sure, I've got some down time. He has 3 children, among them an autistic son. Last night, at around 4am, his son decides it's bath time. No one KNEW he was taking a bath until about 4:30 or so. He went in the bathroom, and there was his son, happy as a lark in the tub. He had also opened the cupboards and dumped the contents into the tub as well. . .about 12 rolls of toilet paper, all of the tampons and Kotex, hair products. All in the bathtub. He finds it funny now, but at the time it was understandably a little scary that the kid could get so busy with no one hearing him. He says he's so glad the routine of school has started back. That's VERY scarry. Tony will get up in the middle of the night and start rummaging through the refridgerator or playing in the living room. I always fear he'll want to go exploring outdoors. I always think I should get some sort of alarm on the doors, to alert me if he tries to go outside. No wonder most parents of Autistic kids look like they're half dead during the day. Link to comment Share on other sites More sharing options...
liquidcrystalcompass Posted August 13, 2008 Share Posted August 13, 2008 QUOTE (Cygnus The God Of Balance @ Aug 13 2008, 10:21 AM) QUOTE (Marathonist @ Aug 11 2008, 08:57 PM) I had to share this story with you. It's kind of funny, in its own way. . . I've gotten to be friendly with the night guy at the QuikTrip where I get my coffee (not the same guy who gives me free coffee for being a Rush fan - 2 different stores). We chat a little whenever he's there and they aren't busy. Anyway, I noticed that tonight he was looking a little weary. I remarked upon it, and he asked if I had time for "a little story." Sure, I've got some down time. He has 3 children, among them an autistic son. Last night, at around 4am, his son decides it's bath time. No one KNEW he was taking a bath until about 4:30 or so. He went in the bathroom, and there was his son, happy as a lark in the tub. He had also opened the cupboards and dumped the contents into the tub as well. . .about 12 rolls of toilet paper, all of the tampons and Kotex, hair products. All in the bathtub. He finds it funny now, but at the time it was understandably a little scary that the kid could get so busy with no one hearing him. He says he's so glad the routine of school has started back. That's VERY scarry. Tony will get up in the middle of the night and start rummaging through the refridgerator or playing in the living room. I always fear he'll want to go exploring outdoors. I always think I should get some sort of alarm on the doors, to alert me if he tries to go outside. No wonder most parents of Autistic kids look like they're half dead during the day. You should probably look into doing that. I'm assuming that the older he gets the more that he'll want to explore. Link to comment Share on other sites More sharing options...
GhostGirl Posted August 13, 2008 Author Share Posted August 13, 2008 QUOTE (Cygnus The God Of Balance @ Aug 13 2008, 10:21 AM) QUOTE (Marathonist @ Aug 11 2008, 08:57 PM) I had to share this story with you. It's kind of funny, in its own way. . . I've gotten to be friendly with the night guy at the QuikTrip where I get my coffee (not the same guy who gives me free coffee for being a Rush fan - 2 different stores). We chat a little whenever he's there and they aren't busy. Anyway, I noticed that tonight he was looking a little weary. I remarked upon it, and he asked if I had time for "a little story." Sure, I've got some down time. He has 3 children, among them an autistic son. Last night, at around 4am, his son decides it's bath time. No one KNEW he was taking a bath until about 4:30 or so. He went in the bathroom, and there was his son, happy as a lark in the tub. He had also opened the cupboards and dumped the contents into the tub as well. . .about 12 rolls of toilet paper, all of the tampons and Kotex, hair products. All in the bathtub. He finds it funny now, but at the time it was understandably a little scary that the kid could get so busy with no one hearing him. He says he's so glad the routine of school has started back. That's VERY scarry. Tony will get up in the middle of the night and start rummaging through the refridgerator or playing in the living room. I always fear he'll want to go exploring outdoors. I always think I should get some sort of alarm on the doors, to alert me if he tries to go outside. No wonder most parents of Autistic kids look like they're half dead during the day. Amen to that. I look and feel like a zombie. Stephen isn't an "explorer," though he does like to get up early at times, and roam around. Link to comment Share on other sites More sharing options...
Queen of Megadon Posted August 13, 2008 Share Posted August 13, 2008 QUOTE (liquidcrystalcompass @ Aug 13 2008, 10:40 AM) You should probably look into doing that. I'm assuming that the older he gets the more that he'll want to explore. Oh boy...been there done that. I have a 13 year old son with autism. It doesnt necessarily get worse, it gets different. Just a few weeks ago my son came to my room where I was comfortably sleeping at around 730 AM..."Mommy, I just went outside." YOU DID? WHY? "To get fresh air" Now, he should be perfectly able to do that, he's 13...but, my boy cannot be trusted yet. I sent him to sleep away camp a few weeks ago for the first time--ACK!!--and it turns out he wandered away from camp because he was upset. They found him of course. This is part of the little things about autism...he just didnt think to tell anyone he was going anywhere...he does not understand the danger of what he's doing. (the tub story, which could have been very dangerous...is definitely funny after the fact) Link to comment Share on other sites More sharing options...
Cygnus The God Of Balance Posted August 13, 2008 Share Posted August 13, 2008 QUOTE (Queen of Megadon @ Aug 13 2008, 10:54 AM) QUOTE (liquidcrystalcompass @ Aug 13 2008, 10:40 AM) You should probably look into doing that. I'm assuming that the older he gets the more that he'll want to explore. Oh boy...been there done that. I have a 13 year old son with autism. It doesnt necessarily get worse, it gets different. Just a few weeks ago my son came to my room where I was comfortably sleeping at around 730 AM..."Mommy, I just went outside." YOU DID? WHY? "To get fresh air" Now, he should be perfectly able to do that, he's 13...but, my boy cannot be trusted yet. I sent him to sleep away camp a few weeks ago for the first time--ACK!!--and it turns out he wandered away from camp because he was upset. They found him of course. This is part of the little things about autism...he just didnt think to tell anyone he was going anywhere...he does not understand the danger of what he's doing. (the tub story, which could have been very dangerous...is definitely funny after the fact) It sure seems like Tony has no sense of fear. I am glad he is not too much of an explorer either, but when you hear these stories in the news of Autistic kids wandering off, it just scares the s#&t out of me. Link to comment Share on other sites More sharing options...
Queen of Megadon Posted August 15, 2008 Share Posted August 15, 2008 Disruptive Behavior Someone forwarded this to me. Some parents I know try to keep their autistic children close to them, they dont let them "be seen" in public so much. I'm not one of those parents, I usually go where I want to go and bring him with me. There are times its hard, and I know there will be a struggle between him and me, but I think its important he knows the world and the world knows him, because I wont always be there to run interference. After reading this article though...I quess it might make me think twice, and that maybe, maybe I'm pushing him too far into a world that doesnt want him. And that, makes me terribly sad. Link to comment Share on other sites More sharing options...
GhostGirl Posted August 15, 2008 Author Share Posted August 15, 2008 QUOTE (Queen of Megadon @ Aug 15 2008, 04:06 PM) And that, makes me terribly sad. Me too. Link to comment Share on other sites More sharing options...
Queen of Megadon Posted August 15, 2008 Share Posted August 15, 2008 we just gotta hang in there sista momma. Link to comment Share on other sites More sharing options...
GhostGirl Posted August 25, 2008 Author Share Posted August 25, 2008 A bright note for a change... Some of you might recall that Stephen's last haircut went well, which was a miracle. The social story I used seemed to help last time, but we didn't know if it would work when it was haircut time again. I read it to him again on Friday afternoon, and off we went. In pictures, this is what happened: http://img.photobucket.com/albums/v297/RushBabe/0822081706a.jpg http://img.photobucket.com/albums/v297/RushBabe/0822081709.jpg http://img.photobucket.com/albums/v297/RushBabe/0822082022.jpg http://img.photobucket.com/albums/v297/RushBabe/0822082021.jpg He sat in the chair by himself AND wore the cape for the first time in his life. He fussed a bit at the end and we had to help hold him still while she cut the hair close to his ears, but overall, it went great. One small step for some, but one giant step for Stephen. Link to comment Share on other sites More sharing options...
1-0-0-1-0-0-1 Posted August 25, 2008 Share Posted August 25, 2008 Great pics, and great story. Link to comment Share on other sites More sharing options...
Cygnus The God Of Balance Posted August 25, 2008 Share Posted August 25, 2008 Way to go Stephen!! Does he have his hands up to his ears? Looks like he's trying to cover his ears under the cape. Link to comment Share on other sites More sharing options...
Rushman14 Posted August 25, 2008 Share Posted August 25, 2008 awesome! a very special occasion indeed. http://www.clipartof.com/images/emoticons/thumbnail2/1959_dancing_bannana.gifhttp://www.clipartof.com/images/emoticons/thumbnail2/1959_dancing_bannana.gifhttp://www.clipartof.com/images/emoticons/thumbnail2/1959_dancing_bannana.gifhttp://www.clipartof.com/images/emoticons/thumbnail2/1959_dancing_bannana.gifhttp://www.clipartof.com/images/emoticons/thumbnail2/1959_dancing_bannana.gifhttp://www.clipartof.com/images/emoticons/thumbnail2/1959_dancing_bannana.gifhttp://www.clipartof.com/images/emoticons/thumbnail2/1959_dancing_bannana.gifhttp://www.clipartof.com/images/emoticons/thumbnail2/1959_dancing_bannana.gif Link to comment Share on other sites More sharing options...
GhostGirl Posted August 25, 2008 Author Share Posted August 25, 2008 QUOTE (Cygnus The God Of Balance @ Aug 25 2008, 12:11 PM) Way to go Stephen!! Does he have his hands up to his ears? Looks like he's trying to cover his ears under the cape. Yep, he's covering his ears. Thanks everyone! Link to comment Share on other sites More sharing options...
Alsgalpal Posted August 25, 2008 Share Posted August 25, 2008 QUOTE (GhostGirl @ Aug 25 2008, 07:53 AM) A bright note for a change... Some of you might recall that Stephen's last haircut went well, which was a miracle. The social story I used seemed to help last time, but we didn't know if it would work when it was haircut time again. I read it to him again on Friday afternoon, and off we went. In pictures, this is what happened: http://img.photobucket.com/albums/v297/RushBabe/0822081706a.jpg http://img.photobucket.com/albums/v297/RushBabe/0822081709.jpg http://img.photobucket.com/albums/v297/RushBabe/0822082022.jpg http://img.photobucket.com/albums/v297/RushBabe/0822082021.jpg He sat in the chair by himself AND wore the cape for the first time in his life. He fussed a bit at the end and we had to help hold him still while she cut the hair close to his ears, but overall, it went great. One small step for some, but one giant step for Stephen. Link to comment Share on other sites More sharing options...
lerxt1990 Posted August 25, 2008 Share Posted August 25, 2008 Way to go Stephen on your haircut!!! The big boy buckaroo looks so handsome after his haircut. As for the rest of the stories here Papa Lerxt sends out his prayers, hugs, pats on back, atta boys, hang-in-theres, and deep heartfelt admiration for you folks who are the biggest heroes on the planet earth: those that care for disabled children of any and every kind. They need you, and you are there. There is NO nobler thing in human history. Link to comment Share on other sites More sharing options...
Queen of Megadon Posted August 25, 2008 Share Posted August 25, 2008 QUOTE (GhostGirl @ Aug 25 2008, 01:16 PM) Yep, he's covering his ears. Thanks everyone! YAY STEPHEN!! Great job! and great job to you too GG...it takes a lot of patience to get through those haircuts. I STILL tip his barber extra each time we go. Link to comment Share on other sites More sharing options...
lerxt1990 Posted August 25, 2008 Share Posted August 25, 2008 QUOTE (Queen of Megadon @ Aug 25 2008, 03:08 PM) QUOTE (GhostGirl @ Aug 25 2008, 01:16 PM) Yep, he's covering his ears. Thanks everyone! YAY STEPHEN!! Great job! and great job to you too GG...it takes a lot of patience to get through those haircuts. I STILL tip his barber extra each time we go. Mrs. Lerxt gives haircuts, weve had a LOT of screaming and yelling over the years... all that hair sticking to the red, inflamed, flushed, sweaty, screaming neck and forehead... Link to comment Share on other sites More sharing options...
Natch Posted August 25, 2008 Share Posted August 25, 2008 I'm happy for you GG! I'm sure these small miracles give you hope for the future. Link to comment Share on other sites More sharing options...
nettiesaur Posted August 26, 2008 Share Posted August 26, 2008 one small miracle at a time. It's good to hear this! Link to comment Share on other sites More sharing options...
Mara Posted August 26, 2008 Share Posted August 26, 2008 That is so wonderful to see! He is SUCH a cutie! In the first couple of pictures he does have that "Not real sure about this. . ." expression, so he was a trooper to hang in there. Oh, and I did see the story about the boy getting banned from church. There was another article somewhere about the same boy, and the writers spoke to some other parents of autistic kids. I was both touched and pleased to see that one (fairly large) church has actually made changes to one of the services to accommodate the boy and his family. And they haven't lost any members over it either. Bravo Stephen! Link to comment Share on other sites More sharing options...
Rolinda Bonz Posted August 26, 2008 Share Posted August 26, 2008 ThisWomanIsAmazing! Thank you, Lady April for refering me to her. I bought one of her books on CD, The Fabric of Autism, and I've already learned soooo much about why Timothy reacts the way he does to certain things. I just started the second disc of a 6 disc set. I'm thrilled to the gills. Link to comment Share on other sites More sharing options...
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