1-0-0-1-0-0-1 Posted January 6, 2006 Share Posted January 6, 2006 Bridges that were once blocked are now opening up. Because of how you've handled all this, why am I not surprised? Link to comment Share on other sites More sharing options...
RushRevisited Posted January 6, 2006 Share Posted January 6, 2006 OMG GG!!!! That is unbelievable!!!! Link to comment Share on other sites More sharing options...
DonnaWanna Posted January 6, 2006 Share Posted January 6, 2006 QUOTE (GhostGirl @ Jan 5 2006, 11:19 PM) The hits just keep on comin', folks. I can print this thread out as a way to measure Stephen's journey out of autism. So, today, he had a post-surgery followup appointment. We waited for an hour and half to see the surgeon for all of 2 minutes. Anyway, while we were waiting, and waiting, and waiting, we were singing and playing...and I was counting with him. At school he's been working on recognizing numbers up to five. So, I was holding up fingers and counting...we got to five, and he said, "Figh." I said, "Yes! Five!" Then he smiled and said..."sihh," so I said, "Six!" Stephen: "seh-en." "Seven!" "Ehhht, nint, tent." This from a child who wouldn't even consistently respond to his own name a year ago. As I just told a very dear friend--- tonight, my cup runneth over. Thats AWSUME!! I can print this thread out as a way to measure Stephen's journey out of autism. **Also Years from now u can show HIM how his journey came along Keep up the GREAT work & Persistence, Ur Strength Is DEFINITELY working for the both of you http://www.gettysburgflag.com/images/autism_ribbon4.jpg Link to comment Share on other sites More sharing options...
GhostGirl Posted January 6, 2006 Author Share Posted January 6, 2006 QUOTE (1-0-0-1-0-0-1 @ Jan 5 2006, 10:24 PM)Bridges that were once blocked are now opening up. Because of how you've handled all this, why am I not surprised? Just doing my job. QUOTE (RushRevisited @ Jan 5 2006, 10:27 PM)OMG GG!!!! That is unbelievable!!!! Yes, it is! QUOTE (DonnaWanna @ Jan 5 2006, 10:34 PM)Thats AWSUME!! I can print this thread out as a way to measure Stephen's journey out of autism. **Also Years from now u can show HIM how his journey came along Keep up the GREAT work & Persistence, Ur Strength Is DEFINITELY working for the both of you http://www.gettysburgflag.com/images/autism_ribbon4.jpg Thank you, sis. Link to comment Share on other sites More sharing options...
endlesslymocking Posted January 6, 2006 Share Posted January 6, 2006 That's beautiful ghostgirl....I'm happy for you and Stephen... Link to comment Share on other sites More sharing options...
rushgoober Posted January 6, 2006 Share Posted January 6, 2006 Link to comment Share on other sites More sharing options...
pedro2112 Posted January 6, 2006 Share Posted January 6, 2006 Great News GG!!! Link to comment Share on other sites More sharing options...
ladirushfan80 Posted January 6, 2006 Share Posted January 6, 2006 HOW AWESOME IS THIS???? GREAT WORK mOM...AND STEPHEN (cap locks again....)whoops http://smilies.sofrayt.com/%5E/sg/sparkling%20heart.gif Link to comment Share on other sites More sharing options...
GhostGirl Posted January 6, 2006 Author Share Posted January 6, 2006 QUOTE (ladirushfan80 @ Jan 6 2006, 08:55 AM) HOW AWESOME IS THIS???? GREAT WORK mOM...AND STEPHEN (cap locks again....)whoops http://smilies.sofrayt.com/%5E/sg/sparkling%20heart.gif Thanks, ladi, and everyone! Ladi, you brought out the sparkle-heart. Gotta love that. Link to comment Share on other sites More sharing options...
Daylin Posted January 6, 2006 Share Posted January 6, 2006 QUOTE (GhostGirl @ Jan 5 2006, 10:19 PM) The hits just keep on comin', folks. I can print this thread out as a way to measure Stephen's journey out of autism. So, today, he had a post-surgery followup appointment. We waited for an hour and half to see the surgeon for all of 2 minutes. Anyway, while we were waiting, and waiting, and waiting, we were singing and playing...and I was counting with him. At school he's been working on recognizing numbers up to five. So, I was holding up fingers and counting...we got to five, and he said, "Figh." I said, "Yes! Five!" Then he smiled and said..."sihh," so I said, "Six!" Stephen: "seh-en." "Seven!" "Ehhht, nint, tent." This from a child who wouldn't even consistently respond to his own name a year ago. As I just told a very dear friend--- tonight, my cup runneth over. Oh GG, I'm so happy to hear all of this! Like I said before, "this is just the beginning for Stephen" oops....and this for you>> Link to comment Share on other sites More sharing options...
GhostGirl Posted January 7, 2006 Author Share Posted January 7, 2006 Ahhh...nothing like an evening packed with autism-dealings to bring me crashing back to earth. I'm trying to look at tonight as simply what needed to happen to make sure my feet are firmly planted on terra firma. We ate dinner out, and Stephen did well...ate his meal then played quietly with some trains in the windowsill (we always try to get a window seat if possible). But the couple at the next table were annoyed and did a lot of eye-rolling. I asked if he was bothering them with his playing, and they said, "Not really..." Okay then. Off to the bookstore, in search of a Dora stuffed doll and a Swiper the Fox...and we found both! Then the spoiled brat in the kid's section kept saying, really loudly, "That boy is playing with GIRL TOYS! Mom! Look! Why's he talk so funny? What's WRONG with him?" And the mom's stage whisper, "Don't LOOK at him! He's got mental problems!" I march over and say, "He has autism." She looks like this: Perfect. On to the checkout, but on the way, Stephen picks up a Big Bird stuffed animal to go with Dora and Swiper...no way, says I. I tell the lady at the cash register to just quietly put Big Bird under the counter, and she promptly puts it just out of his reach but in plain sight on the counter. Lovely! Stephen proceeds to lay on the floor and cry. We finally make it out with our purchases, and as soon as we hit the parking lot, he's fine. I, on the other hand, am a wreck. So, reality bites, but things are still looking up overall. The trend is upward, and I'm trying to remember that. Sometimes I just have to let go and be sad, just a little...pull out old pictures of the boys from the B.A. period (before autism) and reminisce about how I thought they'd play together so well, being just 2 years and 4 days apart... Sometimes life doesn't serve up what you order, though, does it? Well, there. I think that's out of my system now. Thanks. Link to comment Share on other sites More sharing options...
DonnaWanna Posted January 7, 2006 Share Posted January 7, 2006 QUOTE (GhostGirl @ Jan 6 2006, 11:48 PM) Ahhh...nothing like an evening packed with autism-dealings to bring me crashing back to earth. I'm trying to look at tonight as simply what needed to happen to make sure my feet are firmly planted on terra firma. We ate dinner out, and Stephen did well...ate his meal then played quietly with some trains in the windowsill (we always try to get a window seat if possible). But the couple at the next table were annoyed and did a lot of eye-rolling. I asked if he was bothering them with his playing, and they said, "Not really..." Okay then. Off to the bookstore, in search of a Dora stuffed doll and a Swiper the Fox...and we found both! Then the spoiled brat in the kid's section kept saying, really loudly, "That boy is playing with GIRL TOYS! Mom! Look! Why's he talk so funny? What's WRONG with him?" And the mom's stage whisper, "Don't LOOK at him! He's got mental problems!" I march over and say, "He has autism." She looks like this: Perfect. On to the checkout, but on the way, Stephen picks up a Big Bird stuffed animal to go with Dora and Swiper...no way, says I. I tell the lady at the cash register to just quietly put Big Bird under the counter, and she promptly puts it just out of his reach but in plain sight on the counter. Lovely! Stephen proceeds to lay on the floor and cry. We finally make it out with our purchases, and as soon as we hit the parking lot, he's fine. I, on the other hand, am a wreck. So, reality bites, but things are still looking up overall. The trend is upward, and I'm trying to remember that. Sometimes I just have to let go and be sad, just a little...pull out old pictures of the boys from the B.A. period (before autism) and reminisce about how I thought they'd play together so well, being just 2 years and 4 days apart... Sometimes life doesn't serve up what you order, though, does it? Well, there. I think that's out of my system now. Thanks. Hey not for nuthin but.. that would and can happen to ANY child..Minus the brat that was yellin about how Stephen spoke. But any child woulda had a cryin fit over bigbird and ANY child would be content playin in the window..with or without his autism GG Ull always bump into others that will "roll" there eyes cuz ur child is playin in their "space" With or without his autism like u said soon as u got in the parkin lot he was fine.I know LOts of kids that woulda carried on bout it till they got home so relax a lil bit GG hes actin his age Link to comment Share on other sites More sharing options...
GhostGirl Posted January 7, 2006 Author Share Posted January 7, 2006 Thanks, Donna. I guess some of that stuff does relate to any child, but it IS obvious to people who are watching that something is up with Stephen, simply because he shows so many of the "classic" autistic behaviors. So, even when he's being good, he's vocalizing and flapping his little hands, etc. The looks we get sometimes are just ridiculous. But your point is well-taken about other kids having a fit over something they want in the store. Thanks for reminding me of that. Link to comment Share on other sites More sharing options...
DonnaWanna Posted January 7, 2006 Share Posted January 7, 2006 QUOTE (GhostGirl @ Jan 7 2006, 12:01 AM) Thanks, Donna. I guess some of that stuff does relate to any child, but it IS obvious to people who are watching that something is up with Stephen, simply because he shows so many of the "classic" autistic behaviors. So, even when he's being good, he's vocalizing and flapping his little hands, etc. The looks we get sometimes are just ridiculous. But your point is well-taken about other kids having a fit over something they want in the store. Thanks for reminding me of that. NP Sis Hell i get those looks too cuz im overweight theres alwayz people out there that just cant comprehend everyone is differant in there own way and starin or rude lil remarks or looks are just that ..RUDE and are really uncalled for & can & DO hurt even if they THINK u dont notice Ur boy is doin GREAT and movin so fast ahead of what those DRs expect of him Brush off those stupiid asses and think how well hes doin Link to comment Share on other sites More sharing options...
GhostGirl Posted January 7, 2006 Author Share Posted January 7, 2006 QUOTE (DonnaWanna @ Jan 6 2006, 11:08 PM) QUOTE (GhostGirl @ Jan 7 2006, 12:01 AM) Thanks, Donna. I guess some of that stuff does relate to any child, but it IS obvious to people who are watching that something is up with Stephen, simply because he shows so many of the "classic" autistic behaviors. So, even when he's being good, he's vocalizing and flapping his little hands, etc. The looks we get sometimes are just ridiculous. But your point is well-taken about other kids having a fit over something they want in the store. Thanks for reminding me of that. NP Sis Hell i get those looks too cuz im overweight theres alwayz people out there that just cant comprehend everyone is differant in there own way and starin or rude lil remarks or looks are just that ..RUDE and are really uncalled for & can & DO hurt even if they THINK u dont notice Ur boy is doin GREAT and movin so fast ahead of what those DRs expect of him Brush off those stupiid asses and think how well hes doin You're so right about brushing off rude and ignorant people. Having Stephen has changed my whole perspective on judging how other peoples' children act in public. I used to do some eye-rolling, I'll admit. But I don't do that any longer, because you just don't know what someone's going through till you live it. Link to comment Share on other sites More sharing options...
DonnaWanna Posted January 7, 2006 Share Posted January 7, 2006 QUOTE (GhostGirl @ Jan 7 2006, 12:18 AM) QUOTE (DonnaWanna @ Jan 6 2006, 11:08 PM) QUOTE (GhostGirl @ Jan 7 2006, 12:01 AM) Thanks, Donna. I guess some of that stuff does relate to any child, but it IS obvious to people who are watching that something is up with Stephen, simply because he shows so many of the "classic" autistic behaviors. So, even when he's being good, he's vocalizing and flapping his little hands, etc. The looks we get sometimes are just ridiculous. But your point is well-taken about other kids having a fit over something they want in the store. Thanks for reminding me of that. NP Sis Hell i get those looks too cuz im overweight theres alwayz people out there that just cant comprehend everyone is differant in there own way and starin or rude lil remarks or looks are just that ..RUDE and are really uncalled for & can & DO hurt even if they THINK u dont notice Ur boy is doin GREAT and movin so fast ahead of what those DRs expect of him Brush off those stupiid asses and think how well hes doin You're so right about brushing off rude and ignorant people. Having Stephen has changed my whole perspective on judging how other peoples' children act in public. I used to do some eye-rolling, I'll admit. But I don't do that any longer, because you just don't know what someone's going through till you live it. http://img229.imageshack.us/img229/8384/bullseye6da.jpg Ur definatly one of the strong people that ino and i envy u in that way Keep up the GREAT work what am i sayin...great work? ur just bein a MOM A super one at that ya! Link to comment Share on other sites More sharing options...
pedro2112 Posted January 7, 2006 Share Posted January 7, 2006 QUOTE (GhostGirl @ Jan 6 2006, 10:48 PM) Ahhh...nothing like an evening packed with autism-dealings to bring me crashing back to earth. I'm trying to look at tonight as simply what needed to happen to make sure my feet are firmly planted on terra firma. We ate dinner out, and Stephen did well...ate his meal then played quietly with some trains in the windowsill (we always try to get a window seat if possible). But the couple at the next table were annoyed and did a lot of eye-rolling. I asked if he was bothering them with his playing, and they said, "Not really..." Okay then. Off to the bookstore, in search of a Dora stuffed doll and a Swiper the Fox...and we found both! Then the spoiled brat in the kid's section kept saying, really loudly, "That boy is playing with GIRL TOYS! Mom! Look! Why's he talk so funny? What's WRONG with him?" And the mom's stage whisper, "Don't LOOK at him! He's got mental problems!" I march over and say, "He has autism." She looks like this: Perfect. On to the checkout, but on the way, Stephen picks up a Big Bird stuffed animal to go with Dora and Swiper...no way, says I. I tell the lady at the cash register to just quietly put Big Bird under the counter, and she promptly puts it just out of his reach but in plain sight on the counter. Lovely! Stephen proceeds to lay on the floor and cry. We finally make it out with our purchases, and as soon as we hit the parking lot, he's fine. I, on the other hand, am a wreck. So, reality bites, but things are still looking up overall. The trend is upward, and I'm trying to remember that. Sometimes I just have to let go and be sad, just a little...pull out old pictures of the boys from the B.A. period (before autism) and reminisce about how I thought they'd play together so well, being just 2 years and 4 days apart... Sometimes life doesn't serve up what you order, though, does it? Well, there. I think that's out of my system now. Thanks. GG, Frankly, your child's behaviour is a heck of a lot better than most of the kids I see nowadays! And most of that bad behaviour is due to lack of good parenting. When you see kids that act like that (that don't have Autism or other similar conditions), you usually see what causes that behaviour...... the parent ends up buying the bigbird for the kid just to shut him up! Link to comment Share on other sites More sharing options...
GhostGirl Posted January 7, 2006 Author Share Posted January 7, 2006 True, pedro. Thanks. Link to comment Share on other sites More sharing options...
Necromancer Posted January 7, 2006 Share Posted January 7, 2006 QUOTE (GhostGirl @ Jan 7 2006, 12:18 AM) QUOTE (DonnaWanna @ Jan 6 2006, 11:08 PM) QUOTE (GhostGirl @ Jan 7 2006, 12:01 AM) Thanks, Donna. I guess some of that stuff does relate to any child, but it IS obvious to people who are watching that something is up with Stephen, simply because he shows so many of the "classic" autistic behaviors. So, even when he's being good, he's vocalizing and flapping his little hands, etc. The looks we get sometimes are just ridiculous. But your point is well-taken about other kids having a fit over something they want in the store. Thanks for reminding me of that. NP Sis Hell i get those looks too cuz im overweight theres alwayz people out there that just cant comprehend everyone is differant in there own way and starin or rude lil remarks or looks are just that ..RUDE and are really uncalled for & can & DO hurt even if they THINK u dont notice Ur boy is doin GREAT and movin so fast ahead of what those DRs expect of him Brush off those stupiid asses and think how well hes doin You're so right about brushing off rude and ignorant people. Having Stephen has changed my whole perspective on judging how other peoples' children act in public. I used to do some eye-rolling, I'll admit. But I don't do that any longer, because you just don't know what someone's going through till you live it. I know brushing off is the correct thing to do, but i think you're an amazing person to be able to do that. I am far to weak to be able to brush off an asshole's remarks or faces if they were made at my child no matter what. Hopefully just reading some of this, I can learn a bit from you. I remember one of the biggest fights I had ever gotten into was over a comment. We had our two children out and recently I had "lost" my oldest at a fair. It turned out that he'd seen his mom and ran to her while I was paying to get into an attraction. Needless to say I flipped out when i looked down and he was gone in the blink of an eye. ANYWAY... we got one of those wrist "leashes" and that way we felt very secure in crowds. I was so traumatized over that. One day at a mall, some assbag made a comment about how kids are not dogs and should not be on leashes. It wasn't like it was around his neck... it wasn't even a harness, it was a velcro strap around his wrist tethered to one around mine. I took the strap off and gave it to my wife and approached the guy. Needless to say he got even mouthier. I, not having your skills at handling things, proceeded to do something i'm not to proud of and was ejected from the mall by three security guards. I could never handle the public like you have GG. Kudos to you and keep up the good work. You and Bonzie and anyone else that has to deal with that kind of crap on a higher level than the rest of us are truley amazing. ken Link to comment Share on other sites More sharing options...
GhostGirl Posted January 7, 2006 Author Share Posted January 7, 2006 Ken, believe me, sometimes it takes all my strength to hold back. So I understand what you mean. It doesn't make you a bad person. We all get very protective when it comes to our children. Link to comment Share on other sites More sharing options...
Midway Hawker Posted January 12, 2006 Share Posted January 12, 2006 Hi GG, I started looking at this thread from your comment in that other thread. It's terrible what has happened. I've only recently become aware of things like this due to a change in my own life. I feel for you and offer my heart-felt prayers. It probably nothing you haven't already seen, but here's an article from a web site that I trust more than any other out there: The great thimerosal cover-up: Mercury, vaccines, autism and your child's health Link to comment Share on other sites More sharing options...
GhostGirl Posted January 14, 2006 Author Share Posted January 14, 2006 QUOTE (Earthshine @ Jan 12 2006, 12:37 PM)Hi GG, I started looking at this thread from your comment in that other thread. It's terrible what has happened. I've only recently become aware of things like this due to a change in my own life. I feel for you and offer my heart-felt prayers. It probably nothing you haven't already seen, but here's an article from a web site that I trust more than any other out there: The great thimerosal cover-up: Mercury, vaccines, autism and your child's health Thank you for that link! More in the "woo hooo" category today. This is an excerpt from an email that Stephen's aide sent me this morning (she shadows him when he goes with his kindergarten class to music, art, etc.): ...And of course, I've been showing all the teachers how great Stephen is at counting!!!! He's filling in some letters in the alphabet too when we go over those. I can tell such a difference from the first of the year. He's interacting and getting involved at PE and he's getting much better in music and I think he sings with them, it's cute. He's so smart!! I just can't wait to see how much more progress we're going to make! Love, Jen Link to comment Share on other sites More sharing options...
Bastille Night Posted January 14, 2006 Share Posted January 14, 2006 So great to hear about the progress that Stephen is making GG!!!! I can't even begin to imagine the trials (and tribulations) that you must be going through. Kudos for keeping your wonderful spirit intact through the hard times eh! Link to comment Share on other sites More sharing options...
DonnaWanna Posted January 14, 2006 Share Posted January 14, 2006 Just gettin good news after good news from that Lil one of urz GG thats great! Glad u have one of the "good" Aides,she sounds dedicated to him & ur family lots out there that give us aides a bad name glad u have a good one Link to comment Share on other sites More sharing options...
DonnaWanna Posted January 17, 2006 Share Posted January 17, 2006 Hi Stephen! http://img368.imageshack.us/img368/5289/dora6bo.gif Saw this pic and ur lil one popped in my mind thought hed like it Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now