Angua Posted May 23, 2008 Share Posted May 23, 2008 Well we saw the neurologist yesterday (and actually saw the consultant in person) and were slowly upping sodium valproate over 2 months. If that doesn't help or she's getting too drowsy we're to go back and he'll try something else. At least things are being looked at now. Hope you're doing OK Drumnut Link to comment Share on other sites More sharing options...
Drumnut Posted May 24, 2008 Author Share Posted May 24, 2008 Good today, I slept more than I wanted but that's just a side effect of the meds. I mowed the lawn today, and had steak for dinner tonight, that's always good for a nap. Link to comment Share on other sites More sharing options...
missionman Posted May 24, 2008 Share Posted May 24, 2008 Link to comment Share on other sites More sharing options...
Drumnut Posted May 25, 2008 Author Share Posted May 25, 2008 Doin' good today, just wishing I could change time and space. Link to comment Share on other sites More sharing options...
Drumnut Posted May 25, 2008 Author Share Posted May 25, 2008 I hate Epilepsy. Link to comment Share on other sites More sharing options...
Drumnut Posted May 25, 2008 Author Share Posted May 25, 2008 Doing good today, but my internal body clock is all screwed up. I'm up all night, and sleeping all day. I'm a night person anyway, so it's nothing new to me. Link to comment Share on other sites More sharing options...
Angua Posted May 25, 2008 Share Posted May 25, 2008 QUOTE (Drumnut @ May 25 2008, 06:41 AM) I hate Epilepsy. I'm with you there Link to comment Share on other sites More sharing options...
Mara Posted May 25, 2008 Share Posted May 25, 2008 Anyone here on Keppra? I understand it's outrageously expensive - a neighbor just put their dog on it - Link to comment Share on other sites More sharing options...
Drumnut Posted May 25, 2008 Author Share Posted May 25, 2008 QUOTE (Marathonist @ May 25 2008, 04:16 PM)Anyone here on Keppra? I understand it's outrageously expensive - a neighbor just put their dog on it - I've never tried it and I'm on Disability, so that takes care of the cost of my meds. I doubt if you can get Disability for a pet... There are less expensive meds out there. I've never taken it, so I'm not sure of the cost or side effects. If I were your neighbor, I would see if there's a less expensive med they can put their dog on. Link to comment Share on other sites More sharing options...
Drumnut Posted May 27, 2008 Author Share Posted May 27, 2008 My application for a seizure response dog came today, I'm going to get it in the mail first thing in the morning. No seizures today, no headaches, I guess you could call it a good day. Link to comment Share on other sites More sharing options...
missionman Posted May 27, 2008 Share Posted May 27, 2008 I'm happy for ya man!!! I just wish there was something I could do for ya man. Link to comment Share on other sites More sharing options...
yes.2 Posted May 27, 2008 Share Posted May 27, 2008 (edited) Today while I was making balloon animals and painting faces at a restaurant a cute little blond girl age 8-9 came up.....As always I charmed her into her comfort zone. She emediatly started talking about how she just came from her Dr. and how she has Epileptic, seizures.....She looked completely normal. By saying that, I mean she looked as normal as any other child you'd come across.... Anyway, I told her a story of a kid I new since as far back as I can remember who had seizures. I told her how they cured them by her teens and how today she's completely normal....then, I told her how it's a sigh of having a brain that's known to do great things...And how people live long lives all the time with the condition.....You see, by her tone as she was telling me about her condition I could see she was pretty beat down...Even though she didn't let it show....So, I tried to reinforce some good points about the issue.... If you think you're gonna die....You usually do.....If you focus on life and gettin' on with it you are much less likely to die.... She wouldn't leave after I had this talk with her......She just stood there while I tended to all the other kids and smiled and socialized with the other kids.....I made her something very special that took over 6 balloons....Painted a rainbow butterfly on her cheek....Her parents finished their meal....Gathered her up and walked out the door..... I can't stop thinking about her.....Poor girl. Edited May 27, 2008 by yes.2 Link to comment Share on other sites More sharing options...
Drumnut Posted May 28, 2008 Author Share Posted May 28, 2008 Thanks MM I just have to take it one day at a time and do the right things to try and stay on track. Link to comment Share on other sites More sharing options...
Drumnut Posted May 28, 2008 Author Share Posted May 28, 2008 QUOTE (yes.2 @ May 27 2008, 02:20 AM)Today while I was making balloon animals and painting faces at a restaurant a cute little blond girl age 8-9 came up.....As always I charmed her into her comfort zone. She emediatly started talking about how she just came from her Dr. and how she has Epileptic, seizures.....She looked completely normal. By saying that, I mean she looked as normal as any other child you'd come across.... Anyway, I told her a story of a kid I new since as far back as I can remember who had seizures. I told her how they cured them by her teens and how today she's completely normal....then, I told her how it's a sigh of having a brain that's known to do great things...And how people live long lives all the time with the condition.....You see, by her tone as she was telling me about her condition I could see she was pretty beat down...Even though she didn't let it show....So, I tried to reinforce some good points about the issue.... If you think you're gonna die....You usually do.....If you focus on life and gettin' on with it you are much less likely to die.... She wouldn't leave after I had this talk with her......She just stood there while I tended to all the other kids and smiled and socialized with the other kids.....I made her something very special that took over 6 balloons....Painted a rainbow butterfly on her cheek....Her parents finished their meal....Gathered her up and walked out the door..... I can't stop thinking about her.....Poor girl. I don't know if I'll ever be able to 'cure' mine at my age, (age hidden to protect the guilty) It was later in life when mine started, I was in my mid 30's. All I can do is take it one day at a time to help prevent them, make sure I eat right, take my meds and get plenty of rest. I see young children when I go to my Neurologist, and feel for them with Epilepsy at their age. It's hard to look at a young child like that and know they go through the same thing I do. Their innocent faces just break my heart and hope what you said happens, just hope they grow out of it. I have a malignant cyst on my brain, and they thing thats were they originate. Surgery is not really an option, so I just have to learn to live with them and do what I can to prevent them. Link to comment Share on other sites More sharing options...
missionman Posted May 28, 2008 Share Posted May 28, 2008 Damn drumnut... I really wish you you the best. It breaks my heart just thinking about those kids Link to comment Share on other sites More sharing options...
Drumnut Posted May 31, 2008 Author Share Posted May 31, 2008 Good today, just glad the week is over and I have some time to relax. Link to comment Share on other sites More sharing options...
Mara Posted May 31, 2008 Share Posted May 31, 2008 Do people sometimes just grow out of epilepsy? I've heard of a decrease in seizure frequency with age before, but are there cases where the seizures just go away entirely? Link to comment Share on other sites More sharing options...
gleamingalloyaircar81 Posted May 31, 2008 Share Posted May 31, 2008 QUOTE (yes.2 @ May 27 2008, 02:20 AM) Today while I was making balloon animals and painting faces at a restaurant a cute little blond girl age 8-9 came up.....As always I charmed her into her comfort zone. She emediatly started talking about how she just came from her Dr. and how she has Epileptic, seizures.....She looked completely normal. By saying that, I mean she looked as normal as any other child you'd come across.... Anyway, I told her a story of a kid I new since as far back as I can remember who had seizures. I told her how they cured them by her teens and how today she's completely normal....then, I told her how it's a sigh of having a brain that's known to do great things...And how people live long lives all the time with the condition.....You see, by her tone as she was telling me about her condition I could see she was pretty beat down...Even though she didn't let it show....So, I tried to reinforce some good points about the issue.... If you think you're gonna die....You usually do.....If you focus on life and gettin' on with it you are much less likely to die.... She wouldn't leave after I had this talk with her......She just stood there while I tended to all the other kids and smiled and socialized with the other kids.....I made her something very special that took over 6 balloons....Painted a rainbow butterfly on her cheek....Her parents finished their meal....Gathered her up and walked out the door..... I can't stop thinking about her.....Poor girl. You are a great person for that! Link to comment Share on other sites More sharing options...
Drumnut Posted May 31, 2008 Author Share Posted May 31, 2008 None today, spent most of the day bangin' on my drums and making other various noises, I'm sure my neighbors love me by now. Compared to the 20 inch Zildjian ride I used to use makes my 22 inch Paragon ride sound loud and awesome, the bell on it rings like a church bell. Link to comment Share on other sites More sharing options...
missionman Posted May 31, 2008 Share Posted May 31, 2008 You're sooo cool Drumnut Link to comment Share on other sites More sharing options...
Drumnut Posted May 31, 2008 Author Share Posted May 31, 2008 QUOTE (missionman @ May 30 2008, 11:50 PM)You're sooo cool Drumnut Link to comment Share on other sites More sharing options...
Drumnut Posted June 2, 2008 Author Share Posted June 2, 2008 Good day today, big breakfast with friends today that put me into a deep food induced coma for a few hours. A big meal like that usually makes for a good day for me. Link to comment Share on other sites More sharing options...
lerxt1990 Posted June 2, 2008 Share Posted June 2, 2008 QUOTE (Drumnut @ Jun 1 2008, 11:52 PM) Good day today, big breakfast with friends today that put me into a deep food induced coma for a few hours. A big meal like that usually makes for a good day for me. Link to comment Share on other sites More sharing options...
Drumnut Posted June 2, 2008 Author Share Posted June 2, 2008 QUOTE (lerxt1990 @ Jun 1 2008, 10:54 PM) QUOTE (Drumnut @ Jun 1 2008, 11:52 PM) Good day today, big breakfast with friends today that put me into a deep food induced coma for a few hours. A big meal like that usually makes for a good day for me. Link to comment Share on other sites More sharing options...
ReflectedLight Posted June 2, 2008 Share Posted June 2, 2008 (edited) I can't relate, but it pisses me off that we have all kinds of technology, and spend billions and billions on the space program, yet they haven't cured anything on earth in a long time. Edited June 2, 2008 by hope70 Link to comment Share on other sites More sharing options...
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