Drumnut

None today.

None today, yesterday as of now actually...

QUOTE (Del_Duio @ Jul 7 2010, 05:27 AM)QUOTE (Drumnut @ Jul 6 2010, 04:56 AM) I need to stop drinking Coke Zero, it contains Aspartame and it's not supposed to be good for people with neurological conditions, so I've read. I drink Coke Zero like it's water... Yeah I can back this up 100% When my son was on one of the diets we gave him sugar-free Jello and his seizures went way up. It had to be the aspartame because the seizure frenquency went back to "normal" after we stopped feeding it to him. I don't want to hijack Drumnut's thread too much but we had a bad episode yesterday morning. My son had a drop seizure and went backwards into a wall mirror, which then fell on him and shattered. My wife took him to the hospital and he ended up getting a few stitches in the side of his head. I cleaned up the mess when I got home: the shattered glass on the floor, the washcloth which was pretty much soaked with blood. It was a bad scene but luckily my little guy's better and happy now. Drumnut, do you or have you ever had to wear a helmet? We are going to pick up an "official" hospital one in a few days (we had one fabricated the other week but it takes awhile to make). Any advice on something like that? Thanks. Wow, I'm sorry to hear about your son! I've never worn a helmet and never been told I should so I probably wouldn't be much help there. I'm too hard headed and wouldn't wear one anyway. I've read all kinds of things about artificial sweeteners and and none of them good for neurological conditions. I shouldn't be the one to toot my own horn about artificial sweeteners because I live on them, more like addicted to them. I'm addicted to Coke Zero and that's sweetened with Aspartame. I tried drinking regular Coke this past week and it tasted horrible to me. I love carbonated drinks but need to find something without artificial sweeteners. I'm a smoker too, I'm sure that doesn't help much either. A healthy diet is key to keeping seizures under control and mine is horrible. I think @ my next Dr visit, I'm going to ask for a referral to a dietician. Please don't feel like you're hijacking my thread, I need all the support I can get and hopefully we can bounce ideas and support off of each other. I didn't have any today and made sure I ate right, and took my meds. Do the things that work and don't do the things that don't.

QUOTE (LakesideMaiden @ Jul 7 2010, 09:38 AM)QUOTE (Janie @ Jul 4 2010, 11:00 AM) God as long as they don't put that new logo on their thongs. lmao!!!!!!!!!!!!! Gotta admit, that's a great line!

QUOTE (Del_Duio @ Jul 7 2010, 05:27 AM)QUOTE (Drumnut @ Jul 6 2010, 04:56 AM) I need to stop drinking Coke Zero, it contains Aspartame and it's not supposed to be good for people with neurological conditions, so I've read. I drink Coke Zero like it's water... Yeah I can back this up 100% When my son was on one of the diets we gave him sugar-free Jello and his seizures went way up. It had to be the aspartame because the seizure frenquency went back to "normal" after we stopped feeding it to him. I don't want to hijack Drumnut's thread too much but we had a bad episode yesterday morning. My son had a drop seizure and went backwards into a wall mirror, which then fell on him and shattered. My wife took him to the hospital and he ended up getting a few stitches in the side of his head. I cleaned up the mess when I got home: the shattered glass on the floor, the washcloth which was pretty much soaked with blood. It was a bad scene but luckily my little guy's better and happy now. Drumnut, do you or have you ever had to wear a helmet? We are going to pick up an "official" hospital one in a few days (we had one fabricated the other week but it takes awhile to make). Any advice on something like that? Thanks. I'm sorry to hear about your son, it just shows how unpredictable Epilepsy can be and how it strikes whenever it damn well pleases. Don't worry about "hijacking" my thread, I'm just sorry for the reason you're posting here. The title of the thread asks if anyone has them so feel welcome to post anytime you like but like I said, I'm just sad for the reasons you are posting here. Epilepsy is a very hard thing to deal with, especially in you and your son's case where seizures aren't the only thing you have to deal with. I've had a few bloody incidents but nothing like your son has. I've never worn a helmet and my Dr has never said anything to me about wearing one. I guess knowing me, he figures I'm too hard-headed to wear one anyway! I wouldn't know anything about a helmet like that but a hospital or medical supply store might be the best place to start looking I would think. I wonder if a Dr can give you a prescription for something like that to see if your insurance would pick up the cost for it..? I know I need to give up the Coke Zero and I want to find something with some type of "fizz" to it like the carbonation that Coke has. My meds make me feel nauseous and the carbonation settles my stomach. Finding some type of carbonated fruit juice would be something I'd like, it would even be better if it was a natural fruit drink rather than something with artificial flavoring. I know in my case, meds, plenty of rest and eating right are the best things for me. I tried a "regular" Coke the other day and couldn't stand the taste of it. I guess I've just acquired the taste of Coke Zero with Aspartame. I probably don't need the calories either. I live in NV desert country and making sure I stay hydrated is pretty important out here. Maybe I should start drinking bottled water to satisfy my thirst, gee, imagine that...!? I know there are small "flavoring packets" you can add to bottled water but, then again, I'd have to make sure the sweetener is safe to drink. I know I'd miss the carbonation though. I hope your son feels better, and his wounds heal without scars from the broken glass, give him a hug for me. Danny

No seizures today, more like yesterday as of this post... we'll see how things go today...

Wow, great shots!!! The MGM show is going to be a blast, I can't wait!!!

I need to stop drinking Coke Zero, it contains Aspartame and it's not supposed to be good for people with neurological conditions, so I've read. I drink Coke Zero like it's water...

Had another one yesterday. My Dr won't let me switch back to a drug I liked. He asks me, "Why do you want to switch, you're not having seizures?" Hmmm, maybe Doc should maybe have another look... but don't try anything different that might work!

I love the opening videos, to me, it really shows off their sense of humor. I like when there are scenes or lines that only newer Rush fans would get from more recent albums and other scenes that only us old timers catch. They've billed themselves as "An Evening With Rush" for a long time without an opening act and the opening videos to me build up that anticipation factor. Keep the opening video productions...

Welcome to the Forum!!! You're coming a LONG, EXPENSIVE way to see a show, hope you have a GREAT one!!!

QUOTE (nobodys hero @ Jun 30 2010, 12:44 PM) I thought for sure RUSHHEAD666 would have given us a report by now. He called me last night during a song so I could hear thanks Earl! Now THAT'S a tease, I mean spoiler if I've ever heard one!

None today so far...

I wonder if you hand carry it to where they are playing-if you're going to the show and get some type of "receipt" to be able to pick it up whether they sign it or not..? I'm not sure how to go about doing it this way, just a thought...

None today...

Not having a seizure today!

QUOTE (GeddyLeefan2112 @ Jun 23 2010, 11:50 PM)I feel for you... I really do. Stay strong, man. Keep fighting. It's nice to see a lot of "none today" posts. I know from personal experience how hard it is living with a chronic condition that is hard to control and interferes with your daily life. I can understand medicine and doctors that are very little help. Stay strong and keep positive. I'll pray for you. Thanks, I appreciate it. My Epilepsy is something I struggle with every day. Ever since my Epilepsy began, it's completely changed my life. I can't drive, I can't work, and am now on disability. I'd give just about anything to drive to a job every day. My friends and family know that bitching to me about their job or their car is a bad idea, I'd switch places with them in a heartbeat. I do everything my damn Dr's tell me but I still have seizures. They're not the one's living my life with Epilepsy, they just know what they've learned to treat it, Dr's are a pain in the neck sometimes. I just do the things that work and avoid the things that don't. No seizures today BTW!

QUOTE (azwink @ Jun 22 2010, 10:58 PM)Hey Drumnut! I'm new to the forum and just noticed this thread...sorry to hear your struggles bro...I have had epilepsy for around 13 years now after hitting my head while I was in the Air Force. I have Grand Mal seizures too, which absolutely suck. They're painful and when they start I pray to pass out quickly so I don't feel the excruciating pain anymore. The after effects are really bad too...body hurts everywhere, bad headaches, and I've almost bit my tongue in two a few times. Anyway, I have been able to control them with meds..Tegretol XR works for me...I've tried Keppra with no luck....I do however have auras quite a bit, this is where it feels like a seizure is coming on then it stops, sometimes refered to as a mini seizure. I hope you get a hold of your episodes at some point. They're coming out with new drugs all the time. Stay strong brother! Dan Welcome Dan, I go by Danny. I've been having seizures for many years and they ended any chances of me getting into the military a long time ago. I wanted to go into the Air Force but, at the time, my Epilepsy would have shown up in my medical records and I never would have even passed the physical. I too have Gran Mal seizures and sometimes so bad that I sleep for days after a big one. I'm currently taking Lamictal and Keppra and hate them both. I want to switch back to Dilantin but my Dr and family seem to think the drugs I'm on are "working" but they're not "working" well enough for me. I don't need to pray to pass out quickly, mine hit fast, hard, and painful so I understand what you're going through there. I'm on disability and can't work, I would love to be able to work and drive. Are you on disability? Disability isn't much and I HATE trying to get around without being able to drive. You stay strong too brother, hopefully we can give each other support here and try to get our damn seizures under control. I keep it simple, eat right, sleep right, and make sure I take my drugs at the same time every day to try and keep mine under control. Even if I do all the right things, I still have them. Keep in touch brother, I unfortunately use this thread as sort of a "seizure diary." I'm getting better control of them now that I live in a warmer part of the country, I hate being cold! Las Vegas, NV is a hell of a lot warmer than Erie, Pennsylvania where I had been living for the past few years! Are you on disability?

None today!

QUOTE (BrightAntennae @ Jun 21 2010, 09:35 PM)NEWS FLASH: This just in...the Manhattan Transfer are scheduled to sing back up vocals for the 2010 Rush Time Machine Tour! Now THAT I would sound awesome!!! (Yes I am a Manhattan Transfer fan so no sarcasm intended)

Bring back the Rickenbacker Geddy!

Coke Zero

Had another one early this morning, these damn things strike any time they want, day or night.