GhostGirl Posted January 17, 2006 Author Share Posted January 17, 2006 QUOTE (DonnaWanna @ Jan 17 2006, 02:49 PM) Hi Stephen! http://img368.imageshack.us/img368/5289/dora6bo.gif Saw this pic and ur lil one popped in my mind thought hed like it Thank you, Donna! I can't wait to show it to him tonight. He'll LOVE it. Link to comment Share on other sites More sharing options...
physics23 Posted January 23, 2006 Share Posted January 23, 2006 That's a really beautiful sig, GG. Link to comment Share on other sites More sharing options...
GhostGirl Posted January 23, 2006 Author Share Posted January 23, 2006 QUOTE (physics23 @ Jan 23 2006, 04:40 PM) That's a really beautiful sig, GG. Thanks, physics. I was concerned that it might not be working right, but I'm glad you were able to see it. Link to comment Share on other sites More sharing options...
GhostGirl Posted February 8, 2006 Author Share Posted February 8, 2006 Stephen has been on the full dose of chelation meds for 2 1/2 weeks now. It still amazes me that he takes this stuff so willingly, because it smells awful...and this is one picky kid. But he soldiers on, taking it every night without a fuss. He seems to be suffering some "detox" side effects, but I'm trying to look at this as a good sign...I've read many accounts of parents sharing the same thing. This stuff is coming out of him, and it's making his behavior a tad...interesting...but we continue to have high hopes. He says more words every week, and surprises me often...the other night I was upset at him for not getting out of the tub when he needed to, and, after I finally wrestled him out, and held his hands so he couldn't bop me a good one, he looked at me and said, "Stee-yen...STOP!" (which of course translates into "Stephen, stop." ) So, we are working through challenges, but the trend is upward. Link to comment Share on other sites More sharing options...
sullysue Posted February 8, 2006 Share Posted February 8, 2006 Wow, Belle. It sounds as though the chelation is working miracles. How does it work? Does it cause the body to leech the mercury out? At any rate, I'm so happy for you, Stephen and your whole family. Link to comment Share on other sites More sharing options...
Pags Posted February 8, 2006 Share Posted February 8, 2006 THIS IS JUST SENSATIONAL, GG!! EXCELLENT NEWS!! WTG STEPHEN Link to comment Share on other sites More sharing options...
GhostGirl Posted February 8, 2006 Author Share Posted February 8, 2006 QUOTE (sullysue @ Feb 8 2006, 10:19 AM) Wow, Belle. It sounds as though the chelation is working miracles. How does it work? Does it cause the body to leech the mercury out? At any rate, I'm so happy for you, Stephen and your whole family. Thanks, sis. Here's a short description of what chelating is: QUOTE Chelating agents are substances which can chemically bond with, or chelate (from the Greek chele, claw), metals, minerals, or chemical toxins from the body. The chelating agent actually encircles a mineral or metal ion and carries it from the body. We've gotten some flak from people who think we're a little too..."granola" about this. (Meaning, too earthy or non-traditional.) But you know what? I could care less. Thanks for always caring. Link to comment Share on other sites More sharing options...
GhostGirl Posted February 8, 2006 Author Share Posted February 8, 2006 QUOTE (paganoman @ Feb 8 2006, 10:24 AM) THIS IS JUST SENSATIONAL, GG!! EXCELLENT NEWS!! WTG STEPHEN Thanks, pags. Link to comment Share on other sites More sharing options...
rushgoober Posted February 8, 2006 Share Posted February 8, 2006 Any postive progress is a reason to celebrate! Much love to you and Stephen! Link to comment Share on other sites More sharing options...
My_Shrimp_Cot Posted February 8, 2006 Share Posted February 8, 2006 Link to comment Share on other sites More sharing options...
GhostGirl Posted February 8, 2006 Author Share Posted February 8, 2006 Thanks, guys! Link to comment Share on other sites More sharing options...
D-13 Posted February 9, 2006 Share Posted February 9, 2006 GG! This is wicked awesome news! Soooo happy for you and Stephen!! WOOHOO! and I agree with physics23...love your new sig! Link to comment Share on other sites More sharing options...
Daylin Posted February 9, 2006 Share Posted February 9, 2006 It's always good to hear positive news about Stephen! Link to comment Share on other sites More sharing options...
GhostGirl Posted February 23, 2006 Author Share Posted February 23, 2006 I ran across this link. The kid featured is very high-functioning, as you'll see, but I can tell he definitely has autism. Anyway, this one's a feel-good story if I've ever seen one. Enjoy. (You may have to install CNN's media player to see it.) Video: J-Mac's hoop dream come true Link to comment Share on other sites More sharing options...
Test4VitalSigns Posted February 24, 2006 Share Posted February 24, 2006 QUOTE (GhostGirl @ Feb 23 2006, 01:23 PM) I ran across this link. The kid featured is very high-functioning, as you'll see, but I can tell he definitely has autism. Anyway, this one's a feel-good story if I've ever seen one. Enjoy. (You may have to install CNN's media player to see it.) Video: J-Mac's hoop dream come true Great story! Some nice shooting there Kudos to the coach for letting him play Link to comment Share on other sites More sharing options...
GhostGirl Posted March 12, 2006 Author Share Posted March 12, 2006 The doctor we've been using has continually let us down with his completely non-aggressive treatment plans, if you can even call them that. Basically we've done the research, and he ordered the tests that we needed after we gave him the list. We found the chelating agent ourselves, and the list goes on. We were really looking for guidance, and we haven't found that. I attended a one-day seminar yesterday given by a doctor from Baton Rouge who treats autism and has had lots of success. I approached her during a break, told her about Stephen and his progress, and she said, "Bring that baby to me, and let's get him well." So, I'm calling Monday to make an appointment with her, and we'll take Stephen to Baton Rouge as soon as possible. To update his progress --- the boy who said maybe 3 words six months ago (names of Thomas trains) now says: "Thank you," with great consistency and appropriateness, all the names of his favorite trains and Dora characters, counts to ten, says most of the alphabet, says his own name, his brother's name, "Mama," "hamburger," and "good-bye" (when he wants to go somewhere, or if he wants YOU to leave him alone, he tells you good-bye...it's so funny ). There are others I can't think of, but the point is, he's starting to speak and actually use language in a meaningful way. It's an incredible thing to watch. Thanks again to those of you who PM or email me to check on him. Link to comment Share on other sites More sharing options...
GhostGirl Posted March 12, 2006 Author Share Posted March 12, 2006 Oh, and since I got my last fillings removed, I'm doing chelation myself. I just got started, but I'm feeling a little tired, which is probably a kind of "detox" side effect. The main thing is to get rid of the mercury and lead built up in my system. Link to comment Share on other sites More sharing options...
RushRevisited Posted March 12, 2006 Share Posted March 12, 2006 Awesome news on the progress GG I hope this doctor in Baton Rouge will help even more Link to comment Share on other sites More sharing options...
GhostGirl Posted March 12, 2006 Author Share Posted March 12, 2006 QUOTE (RushRevisited @ Mar 11 2006, 10:34 PM) Awesome news on the progress GG I hope this doctor in Baton Rouge will help even more Thanks, bro. It has been amazingly hard to find a doctor to help us. I'm hoping this is the one. Link to comment Share on other sites More sharing options...
Trance Posted March 12, 2006 Share Posted March 12, 2006 Sounds like you are on the right path Keep us updated on his progress, sister Link to comment Share on other sites More sharing options...
sullysue Posted March 12, 2006 Share Posted March 12, 2006 My heart jumps every time you tell us about Stephen, Belle. I know that he couldn't ask for a better Mom. Going to Baton Rouge to find what you're looking for is not so far a trip when you consider how far Stephen has come developmentally. It sounds like he's doing great. And, your diligence is incredible. I know you hear that a lot. But, GOD! You are so amazing. I am in awe. You are my heroine. (Not the drug. What I mean is, I admire you quite a lot. ) Link to comment Share on other sites More sharing options...
GhostGirl Posted March 13, 2006 Author Share Posted March 13, 2006 QUOTE (sullysue @ Mar 12 2006, 12:33 AM) My heart jumps every time you tell us about Stephen, Belle. I know that he couldn't ask for a better Mom. Going to Baton Rouge to find what you're looking for is not so far a trip when you consider how far Stephen has come developmentally. It sounds like he's doing great. And, your diligence is incredible. I know you hear that a lot. But, GOD! You are so amazing. I am in awe. You are my heroine. (Not the drug. What I mean is, I admire you quite a lot. ) You have no idea how much that means, Stace. Seriously. Thanks to you also, Trance...you NWW are so special to me. Link to comment Share on other sites More sharing options...
GhostGirl Posted March 22, 2006 Author Share Posted March 22, 2006 I want to thank you all for allowing me this space to talk (well, type) about Stephen. It means more than you know. This thread, along with the lovely people who express concern for him regularly, keeps me sane. We go to Baton Rouge on April 18, and our appointment is at 9:30 a.m. on the 19th. We'll be there for most of the day, hopefully getting all the necessary testing done. We'll come home with a revised treatment plan. Now he's still chelating, and while he hasn't added many new words, he's using words more frequently. Stephen has, since the age of about 2 1/2, often looked at toys or even people using his peripheral vision...sort of tilting his head and peering. It was cute, but we knew it wasn't the proper use of his eyes. I found out recently that this kind of problem can be caused by a vitamin A deficiency. Last Monday I got him some cod liver oil, which is an excellent source of vitamin A (I know... ) but this is berry-flavored and he actually takes it easily. In one week, he has stopped using his peripheral vision to look at things. Period. His rough, dry skin has cleared up, too...turns out follicular hyperkeratosis (which is what he was diagnosed with) is caused by...you guessed it...a lack of vitamin A. That long-winded explanation is to reinforce the theory that many, if not all, symptoms that caused Stephen to be diagnosed with autism are treatable. So, that's the update for now. Thanks for letting me journal all this, and I don't mean for everyone to have to post in response. This is my therapy, in a way. Link to comment Share on other sites More sharing options...
Lenerd Posted March 22, 2006 Share Posted March 22, 2006 This journal is therapeutic for a lot of us, GG. Great to see you so upbeat and positive. Keep up the good work, you're an inspiration to us all. Link to comment Share on other sites More sharing options...
1-0-0-1-0-0-1 Posted March 22, 2006 Share Posted March 22, 2006 GG, it seems like every time you post something in here, you've kicked away another roadblock -- WITHOUT the use of "conventional" drugs. Keep it going! Link to comment Share on other sites More sharing options...
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