Drumnut Posted January 1, 2008 Author Share Posted January 1, 2008 None today, but I've been sleeping like a log. I guess that can't be a bad thing, anything is better than a seizure. Link to comment Share on other sites More sharing options...
CeeJ Posted January 1, 2008 Share Posted January 1, 2008 Just wanted to wish you the best of luck with your health this New Year. I hope that they can get your seizures under control for you. Link to comment Share on other sites More sharing options...
Drumnut Posted January 1, 2008 Author Share Posted January 1, 2008 QUOTE (CeeJ @ Jan 1 2008, 01:35 AM) Just wanted to wish you the best of luck with your health this New Year. I hope that they can get your seizures under control for you. Thanks CeeJ, http://i2.photobucket.com/albums/y49/Drumnut/hug.gif a Happy New Year to you and yours! Link to comment Share on other sites More sharing options...
different strings Posted January 1, 2008 Share Posted January 1, 2008 QUOTE (Drumnut @ Jan 1 2008, 04:39 PM) QUOTE (CeeJ @ Jan 1 2008, 01:35 AM) Just wanted to wish you the best of luck with your health this New Year. I hope that they can get your seizures under control for you. Thanks CeeJ, http://i2.photobucket.com/albums/y49/Drumnut/hug.gif a Happy New Year to you and yours! You and yours what, ya mean that big lame brain necro boy it's ok Drum , DS just being an idjit Happy New Year to you DRUMNUT, may 2008 be a fantastic year for you. Link to comment Share on other sites More sharing options...
Drumnut Posted January 7, 2008 Author Share Posted January 7, 2008 No seizures today, no blood tests either. Link to comment Share on other sites More sharing options...
different strings Posted January 7, 2008 Share Posted January 7, 2008 QUOTE (Drumnut @ Jan 7 2008, 02:58 PM) No seizures today, no blood tests either. I see good things ahead for you in 08 DRUM Link to comment Share on other sites More sharing options...
Drumnut Posted January 12, 2008 Author Share Posted January 12, 2008 QUOTE (different strings @ Jan 7 2008, 06:08 AM)QUOTE (Drumnut @ Jan 7 2008, 02:58 PM) No seizures today, no blood tests either. I see good things ahead for you in 08 DRUM Good so far, but I've been sleeping like a log on new med Lamictal. Link to comment Share on other sites More sharing options...
dirtbikemike Posted January 12, 2008 Share Posted January 12, 2008 I was taking 400 mg of Dilantin daily but after several years, my stomach began to have problems. I also didn't Dilantin because of the effect it had on my communication skills. Now I take Keppra. My stomach doesn't bother me as much and I think I can communicate a little easier. Keppra is $400 a month...OUCH!!!. Keppra is supposedly the 1st drug specifically made for certain seizures. It may not be designed for your type of seizures but talk to your doc if you don't know about it. I mostly had the absent seizures or what is called Auras but would occasionally have the grand mal. I feel your fustration Good Luck! Mike Link to comment Share on other sites More sharing options...
Drumnut Posted January 12, 2008 Author Share Posted January 12, 2008 QUOTE (dirtbikemike @ Jan 12 2008, 01:16 AM)I was taking 400 mg of Dilantin daily but after several years, my stomach began to have problems. I also didn't Dilantin because of the effect it had on my communication skills. Now I take Keppra. My stomach doesn't bother me as much and I think I can communicate a little easier. Keppra is $400 a month...OUCH!!!. Keppra is supposedly the 1st drug specifically made for certain seizures. It may not be designed for your type of seizures but talk to your doc if you don't know about it. I mostly had the absent seizures or what is called Auras but would occasionally have the grand mal. I feel your fustration Good Luck! Mike Hey Mike, nice to meet you! Right now, I'm on Disability, and that is taking care of the cost of my meds. Look into programs by either drug companies, or gov't programs that can help you with the cost of meds. Right now, I'm taking Lamictal, and it seems to be working well for me. Other than feeling tired and hungry all the time, I don't have any other complaints. Those used to be my problems, I couldn't sleep, and I'm a lousy eater anyway. I am taking 100mgs of Dilantin at night, but that's what I was taking before I started taking Lamictal. I think my Neuro just wants to wean me off Dilantin rather than just stop it right away. Danny Link to comment Share on other sites More sharing options...
dirtbikemike Posted January 12, 2008 Share Posted January 12, 2008 That's exactly what your doc is doing. I was weened off Dilantin, converting to Keppra. I don't have much more advice. I really don't know what to say other than I know what you are going through.Mike I'm in Southern Calif. I don't know where you live but if you live out here, maybe we can hit the concert together and share Grand Mal stories before Neil hits the skins. Mike Link to comment Share on other sites More sharing options...
dirtbikemike Posted January 12, 2008 Share Posted January 12, 2008 Now I see you live back east. Damn. Mike Link to comment Share on other sites More sharing options...
Drumnut Posted January 12, 2008 Author Share Posted January 12, 2008 QUOTE (dirtbikemike @ Jan 12 2008, 02:04 AM)Now I see you live back east. Damn. Mike I wish I was back out west, I lived in Las Vegas for 11 years, and ever since I've been back here, the cold and humidity has made my E much worse. I'll probably be moving back out there in the near future, I miss the sunshine. It's always so cold, dark and gloomy here in PA. I talked to someone @ Disability, and they told me I can take by Disability bennies w/ me. That's how I get my meds right now, have you talked to your Dr about Disability? Link to comment Share on other sites More sharing options...
Drumnut Posted January 12, 2008 Author Share Posted January 12, 2008 Keppra is one of the few anti-epileptic drugs I have not tried, I guess any of my Neuro's haven't thought it was right for me. I used to take Depakote and Dilantin together but didn't have very good control with Depakote. I was on Keppra for a short while, but had a few bad episodes on it while I was sleeping. I became violent and still had bad Gran Mals on it. I was taken off of it, and was told to tell any Neuro that I ever see about it so he/she doesn't prescribe it to me. The medication game, as I call it, every time I have another seizure, they try a different one on me. Link to comment Share on other sites More sharing options...
DonnaWanna Posted January 13, 2008 Share Posted January 13, 2008 Sounds like they got ur Meds helpin U lil more Drum thats good! Just last night we rushed my dad to the ER he woke from a nap on the couch and was talkin odd hed use words the wrong way, he knew it wasnt right & would get frustrated & very confused Hes goin threw buncha tests ,but in the ER lastnight they gave us 2 things it could be either a stroke Or a seizer of some sort he knows hes not talkin right but cant put the correct words in order to say what he wants to. just a buncha words that dont make sence Today he seemed a lil better but still usin the wrong words at some times. we'll findout tomorrow the results of the MRI & other tests I just hope he gets back to himself SOON!! Link to comment Share on other sites More sharing options...
Drumnut Posted January 13, 2008 Author Share Posted January 13, 2008 QUOTE (DonnaWanna @ Jan 12 2008, 11:50 PM)Sounds like they got ur Meds helpin U lil more Drum thats good! Just last night we rushed my dad to the ER he woke from a nap on the couch and was talkin odd hed use words the wrong way, he knew it wasnt right & would get frustrated & very confused Hes goin threw buncha tests ,but in the ER lastnight they gave us 2 things it could be either a stroke Or a seizer of some sort he knows hes not talkin right but cant put the correct words in order to say what he wants to. just a buncha words that dont make sence Today he seemed a lil better but still usin the wrong words at some times. we'll findout tomorrow the results of the MRI & other tests I just hope he gets back to himself SOON!! Hope your Dad's okay Donna!!! I hate hospitals, been in too many of them in my lifetime. Meds are doing better, and I'm makin' sure I take them at the same time every day to make sure my level are right. Kinda' sux, but we all do what we have to do, even if it means listening to them damn Dr's. No seizures for me today! Link to comment Share on other sites More sharing options...
CeeJ Posted January 13, 2008 Share Posted January 13, 2008 QUOTE (Drumnut @ Jan 12 2008, 11:28 PM) QUOTE (DonnaWanna @ Jan 12 2008, 11:50 PM)Sounds like they got ur Meds helpin U lil more Drum thats good! Just last night we rushed my dad to the ER he woke from a nap on the couch and was talkin odd hed use words the wrong way, he knew it wasnt right & would get frustrated & very confused Hes goin threw buncha tests ,but in the ER lastnight they gave us 2 things it could be either a stroke Or a seizer of some sort he knows hes not talkin right but cant put the correct words in order to say what he wants to. just a buncha words that dont make sence Today he seemed a lil better but still usin the wrong words at some times. we'll findout tomorrow the results of the MRI & other tests I just hope he gets back to himself SOON!! Hope your Dad's okay Donna!!! I hate hospitals, been in too many of them in my lifetime. Meds are doing better, and I'm makin' sure I take them at the same time every day to make sure my level are right. Kinda' sux, but we all do what we have to do, even if it means listening to them damn Dr's. No seizures for me today! Donna... I will put you Dad in my prayers and hope that he gets back to his normal self. I know that you must be worried sick. The tests will come back and the docs will be able to treat him. Drum... I am glad to hear that you are doing better. Keep up on that schedule with the meds. Seems to be helping a bit. I sure hope it continues. I hate when the ones we care about are hurting or sick. Link to comment Share on other sites More sharing options...
Drumnut Posted January 19, 2008 Author Share Posted January 19, 2008 Oops, I did it again. Had another seizure Wed. the 16th. http://i2.photobucket.com/albums/y49/Drumnut/noangry.gif Link to comment Share on other sites More sharing options...
anagramking Posted January 19, 2008 Share Posted January 19, 2008 QUOTE (Drumnut @ Jan 18 2008, 11:24 PM) Oops, I did it again. Had another seizure Wed. the 16th. http://i2.photobucket.com/albums/y49/Drumnut/noangry.gif Drum, hang in there, man. And don't let this shitty weather get you down, either. Keep fighting the good fight. Link to comment Share on other sites More sharing options...
CeeJ Posted January 19, 2008 Share Posted January 19, 2008 When you say that you tok another one are you referring to Grand Mals or other seizures? I know it has been awhile since the last one. Do you keep a journal of your diet? I know that the Ketogenic Diet is suppose to help. But I wouldn't do it without checking with the doctor first. You have to be monitored over the first portion of this really well. There aren't many doctors that try this with adults but I know that John Hopkins does and has had some really good results. I wish you lots of luck and strength. Link to comment Share on other sites More sharing options...
Drumnut Posted January 19, 2008 Author Share Posted January 19, 2008 QUOTE (CeeJ @ Jan 19 2008, 08:49 AM)When you say that you tok another one are you referring to Grand Mals or other seizures? I know it has been awhile since the last one. Do you keep a journal of your diet? I know that the Ketogenic Diet is suppose to help. But I wouldn't do it without checking with the doctor first. You have to be monitored over the first portion of this really well. There aren't many doctors that try this with adults but I know that John Hopkins does and has had some really good results. I wish you lots of luck and strength. I have Gran Mals, I don't go for that little stuff, I go BIG! I just need to start eating right, and more often. Link to comment Share on other sites More sharing options...
Drumnut Posted January 21, 2008 Author Share Posted January 21, 2008 'Nuther blood test today, but no seizures, I'm gonna' run out of blood! Link to comment Share on other sites More sharing options...
different strings Posted January 21, 2008 Share Posted January 21, 2008 Hang in there Drum and yeah you will enjoy the sunshine much better if you can go west again my friend. Say I am going to 3 shows this time around and will be in your area ( well sort of) maybe I can get to meet you at some stage - that would be cool. Link to comment Share on other sites More sharing options...
Drumnut Posted January 21, 2008 Author Share Posted January 21, 2008 Oh nice, just heard about this: GADOLINIUM Gadolinium is injected into the bloodstream to enhance MRI and MRA images Gadolinium can cause nephrogenic systemic fibrosis (NSF) in patients with kidney problems NSF is a debilitating, potentially fatal disease for which there is no known cure The pharmaceutical companies knew about the life-threatening side effects as early as April 2006 QUOTE The FDA ordered a black box warning in May 2007 for the labels of all gadolinium dyes Gadolinium is the active ingredient in several different brands of contrast dyes used to enhance MRI and MRA images. In April of 2006, reports began to surface that certain patients using gadolinium dyes were developing nephrogenic systemic fibrosis (NSF), previously known as nephrogenic fibrosing dermopathy (NFD). NSF is a disease which causes a thickening of the skin, connective tissues, muscles and internal organs throughout the body. There is no known treatment for NSF, it becomes worse over time and can lead to death. At the Law Offices of Howard L. Nations, we represent people who have been injured by defective drugs or medical devices. If you or someone you know has developed nephrogenic systemic fibrosis after undergoing an MRI or MRA, please contact our offices for a free case evaluation by one of our experienced pharmaceutical attorneys. www.contrastdye-lawsuit.com Link to comment Share on other sites More sharing options...
Arleen2112 Posted January 21, 2008 Share Posted January 21, 2008 2 User(s) are reading this topic (0 Guests and 0 Anonymous Users): Arleen2112, Drumnut Link to comment Share on other sites More sharing options...
Drumnut Posted January 21, 2008 Author Share Posted January 21, 2008 QUOTE (Arleen2112 @ Jan 21 2008, 01:43 PM)2 User(s) are reading this topic (0 Guests and 0 Anonymous Users): Arleen2112, Drumnut Arleen! Link to comment Share on other sites More sharing options...
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