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Epilepsy, seizures...


Drumnut
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QUOTE (Der Trommler @ Mar 25 2010, 09:18 AM)
QUOTE (Drumnut @ Mar 25 2010, 03:07 AM)
None today, I had to go and have a blood drug levels checked today, they're going to call me and  me if it's okay. If not, I'm gonna have to take more drugs I hate every day.

My decided that the Ritalin was too much for me. (I already stopped taking it). He thinks that he needs to double my Celexa dosage (has a side effect that is conducive in bed-No, it's not the Viagra thing though). I tell him and he still wants to have it doubled and then he can give me another med to offset Celexa. wtf.gif

 

I'm changing providers. This isn't worth it.... angry.gif

I hate it when Dr's just keep throwing drugs at something until they think they've found one that works. I'm on Lamictal right now and have the worst side effects of any drug I've ever taken. It's not controlling my seizures, and a known side effect is hair loss. Mine is falling out all over the place. My Dr claims he's never heard of the hair loss side effect. I still want to go back on the drug I liked, Dilantin, but my Dr won't let me. I'm taking Lamictal and Keppra and am on disability. Once I reach a certain limit cost-wise, disability stops paying for it and it ain't cheap! Once I reach my cost limit, I have no way to pay for it. Dilantin is cheap and I feel it's the best drug I've ever taken for Epilepsy. I wish I could figure out a way to convince him to let me try it again, the 2 drugs I'm taking right now aren't controlling my seizures anyway. Now that I'm looking at possible surgery, I'm going to tell him I want to try Dilantin again before I go through with surgery.

 

No seizures for me today. I went to see a different Dr for something else and that went well today.

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QUOTE (Drumnut @ Mar 26 2010, 01:50 AM)
QUOTE (Der Trommler @ Mar 25 2010, 09:18 AM)
QUOTE (Drumnut @ Mar 25 2010, 03:07 AM)
None today, I had to go and have a blood drug levels checked today, they're going to call me and  me if it's okay. If not, I'm gonna have to take more drugs I hate every day.

My decided that the Ritalin was too much for me. (I already stopped taking it). He thinks that he needs to double my Celexa dosage (has a side effect that is conducive in bed-No, it's not the Viagra thing though). I tell him and he still wants to have it doubled and then he can give me another med to offset Celexa. wtf.gif

 

I'm changing providers. This isn't worth it.... angry.gif

I hate it when Dr's just keep throwing drugs at something until they think they've found one that works. I'm on Lamictal right now and have the worst side effects of any drug I've ever taken. It's not controlling my seizures, and a known side effect is hair loss. Mine is falling out all over the place. My Dr claims he's never heard of the hair loss side effect. I still want to go back on the drug I liked, Dilantin, but my Dr won't let me. I'm taking Lamictal and Keppra and am on disability. Once I reach a certain limit cost-wise, disability stops paying for it and it ain't cheap! Once I reach my cost limit, I have no way to pay for it. Dilantin is cheap and I feel it's the best drug I've ever taken for Epilepsy. I wish I could figure out a way to convince him to let me try it again, the 2 drugs I'm taking right now aren't controlling my seizures anyway. Now that I'm looking at possible surgery, I'm going to tell him I want to try Dilantin again before I go through with surgery.

 

No seizures for me today. I went to see a different Dr for something else and that went well today.

I hear ya...He signed the FMLA form but only gave me 1-2 hours 2-3 days a week with a total of 3 months overall. Which means that if I get an anxiety attack at work and my work calls the paramedics again to take me to the ER, I go way over that time. He is not thinking this one out at all.

I have another appointment with a therapist who is sort of a placement person for the psych's. I'm hoping that I can get just the simple things I need. A med that works with little side effects to me. The FMLA form changed to allow me anytime I need to take off so that I can control the anxiety.

The FMLA is also in place so that I can have appointments with doctors and not run the risk of having it put against me.

So, aggravated right now. I hear ya on yours. I hope you fare better than right now.

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None today but I've had an incredible migraine headache all day. banghead.gif

I hate Epilepsy and everything that comes with it. I sometimes just wish my head would fall off. I've taken enough Ibuprofen to put a Horse to sleep today.

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Sometimes I wish... for what Epilepsy has done to my life...

 

QUOTE
SUDEP is the sudden, unexpected death of someone with epilepsy, but who was otherwise healthy, and for whom no other cause of death can be found. Because of its nature, the cause of death in SUDEP is unknown, but researchers are beginning to develop a better understanding. This section explores the various facets of SUDEP and is intended to serve as a resource for those who wish to further their understanding of it.
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None this past week, I've actually been feeling much better lately. It has to be the warm Las Vegas weather, I HATE being cold!!! angry.gif

 

It's 90 degrees here @ 1:00 in the afternoon, as far as I'm concerned, I CAN'T wait for the 100 degree + weather to get here!!!

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Dammit! I did everything I was supposed to but still had another one today! angry.gif

 

See what happens when hockey season ends!

 

I still think the finals instead of being best of 7 should start being best of, oh say, 21? confused13.gif

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